Presentations and DownloadsKeynotesThursday ScheduleFriday Schedule
Directions and Accommodations

Continuing Education Unit InformationCancellation Policy
You may register in person at the Earle Brown Center on Thursday or Friday

Both Thursday and Friday sessions of the 2019 Annual Conference for Professionals in Brain Injury will feature Keynote Addresses in the morning, as well as a closing Keynote Address in the afternoon.

Thursday Morning Keynote Presentation:
Measurement in Chronic TBI: The Importance of Developing Patient-Centered Measures for Self-reported Outcomes to Improve Long-Term Symptom Tracking and Management
Shannon Juengst
Shannon Juengst, PhD, CRC, Assistant Professor, UT Southwestern Medical Center

Measurement and long-term tracking of emotional, cognitive, and behavioral symptoms is critical for effective symptom management in chronic TBI. Current challenges to long-term measurement and tracking of these symptoms include feasibility and availability of the necessary resources and uncertainty about the validity of self-reported measures. Potential solutions to these challenges include developing more efficient and proactive symptom monitoring approaches, leveraging the rapidly growing use of smartphones, and ensuring validity through patient-centered development and rigorous testing of self-reported measures. Specific studies will be presented as exemplars for these potential solutions.

Shannon Juengst is a Certified Rehabilitation Counselor and Assistant Professor in the Department of Physical Medicine and Rehabilitation at the University of Texas Southwestern Medical Center, with a secondary appointment in the Department of Rehabilitation Counseling. Dr. Juengst has over 15 years of research experience in the field of brain injury rehabilitation, focusing on developing evidence-based measurement and interventions for behavioral and emotional outcomes after TBI, applying innovative telehealth methods to improve long-term tracking, and investigating biopsychosocial relationships after TBI. Actively involved in the TBI Model Systems since 2012, she is currently applying her telehealth expertise to the North Texas TBI Model Systems site-specific project and is also the Principal Investigator for the North Texas TBI Model Systems module project examining the feasibility of delivering Problem Solving Training to care partners of patients with TBI during the inpatient rehabilitation stay. Her primary research interest is developing and employing patient-centered measurement tools to track behavioral, cognitive, and emotional symptoms long-term after injury, to better identify and treat these symptoms and minimize their impact on the quality of life of individuals with TBI and their care partners.

Thursday Afternoon Plenary:
Hiking to the Top of Mt. TBI
Holly Kostrzewski
Holly Kostrzewski, MPH

At the age of 18, Holly Kostrzewski's path forever changed when she sustained a traumatic brain injury as the result of a motor vehicle crash. During her ongoing recovery process, Holly faced significant challenges including a seizure disorder, learning disabilities, sleep, depression, and anxiety issues. She also had to learn how to be successful in college and as a working professional with a brain injury. In this session, Holly will discuss the challenges, highs and lows of living with a brain injury and how she went from being barely able to walk a few feet while dragging her right leg behind her to hiking through the woods nearly 20 years later.

Friday Morning Keynote Presentation:
Poor Sleep After Pediatric Brain Injury: Symptom and Contributor to Other Symptoms
Dean Beebe
Dr. Dean Beebe, Ph.D, ABPP, Professor of Pediatrics UC College of Medicine and Director of the Neuropsychology Program at Cincinnati Children's Hospital Medical Center

Sleep disruption is common in the early stages after brain injury, and difficulties with sleep duration, regularity, and quality can persist for months or even years. Sleep is often ignored in treatment plans, or patients and their families inadvertently adopt society's dismissive or hostile attitude towards sleep. However, there is clear evidence that inadequate sleep can seriously hamper thinking, mood, and quality of life – creating problems that can be confused with or compound those from brain injury. In this talk, Dr. Beebe will share that evidence and make the case for routinely addressing sleep in the daily lives of individuals after brain injuries.

Dean Beebe is a Professor of Pediatrics in the University of Cincinnati College of Medicine and Director of the Neuropsychology Program at Cincinnati Children's Hospital Medical Center. Board-certified in clinical neuropsychology and in pediatric neuropsychology, his clinical work specializes in the evaluation and care of children who have neurological conditions or other medical conditions that affect the brain. His research focuses on the consequences of sleep disorders and inadequate sleep on the thinking skills, learning, mood, dietary intake, physical activity, and driving skills in youth. He works closely with other investigators examining the impact of sleep changes on the health of youth following concussions and chronic health conditions. That work has been supported by the NIH, Canadian Institutes of Health Research, American Diabetes Association, State of Ohio, and multiple private foundations. He serves on the Board of Directors for the American Academy of Clinical Neuropsychology, the Advisory Board of Start School Later, Inc., and committees of the AACN and the American Board of Clinical Neuropsychology. Dr. Beebe is an associate editor of the Journal of Pediatric Psychology, and is on the editorial boards for Child Neuropsychology, SLEEP, and Behavioral Sleep Medicine.

Friday Afternoon Plenary:
Putting One Foot In Front Of The Other, A Journey with FTD
Nancy Carlson
Nancy Carlson, Author

Nancy Carlson shares her creative journey as a care giver for her husband Barry who suffered from Frontotemporal Dementia (FTD). Through art, writing and a great deal of hiking, Nancy found her way back from sadness, financial crises and the loss of her companion. Nancy talks about how putting one foot in front of the other literally took her on the path of healing and to a new life she never imagined.

Nancy Carlson has written and illustrated more than 60 children's books since 1979. Her most recent book is titled SOMETIMES YOU BARF, published in 2014. Here is what the Publishers Weekly review said about Nancy's book titled I LIKE ME!: "The foundation of a healthy self-image, the cornerstone of a happy and successful life, is what Carlson's work is all about." In late fall 2012, Nancy heard two words from a neurologist that would rock the happy life she had created with her husband Barry McCool. Those words were frontotemporal dementia (FTD). So the journey with FTD began! What does an author and illustrator do when the family has no health insurance, is one rent check away from being homeless, has a husband swearing at her all day long and the IRS breathing down her back? She keeps creating! Nancy continued to do books, but she also created a blog called "Putting One Foot In Front of the Other." Nancy is working on a graphic style memoir about her husband's FTD Journey.

Presentations and DownloadsKeynotesThursday ScheduleFriday Schedule
Directions and Accommodations

Continuing Education Unit InformationCancellation Policy
You may register in person at the Earle Brown Center on Thursday or Friday